Showing posts with label ocular melanoma. Show all posts
Showing posts with label ocular melanoma. Show all posts

18 January 2009

Post Op


Today is my 3rd post op day since my sinus biopsy. I’m slowly feeling better. About the time I’m feeling back to normal it will be time for the next surgery.

Going into surgery the surgeon was reasonably sure we were dealing with a metastasis from my ocular melanoma. The good news is the tumor is not a melanoma, saving me from stage IV melanoma for now. The tumor is a very rare tumor seen most often in men and smokers. Go figure! It is the first time my surgeon has seen such a tumor. The incidence is 5 to 10 per million people, so almost as rare as ocular melanoma. We will know this week whether it is benign or malignant. Either way it must be removed. Squamous cell cancer tends to be hidden within the tumor. The tumor is also aggressive and tends to erode the bone. It frequently recurs.

I am relieved it isn’t a melanoma. It will require on-going treatment and follow-up whether benign or malignant but that’s life.

The day I had surgery it was about 40 degrees below zero wind chill. Today it is actually pleasant enough out I have the windows open. It’s in the 20’s. There were beautiful big snow flakes this morning. I haven’t been out of the house yet so I’m looking forward to getting out this week. I see the surgeon Wednesday and set up the next surgery.

07 January 2009

My Birthday

Well, today is my birthday. First, the good parts. Alex and Camila took me to lunch at TGIF, my favorite place. I always order the flat iron steak with Jack Daniel's glaze. It was good as usual. They gave me roses (from Colombia), and Camila brought me a pretty porcelain box from Colombia, along with a string bracelet in Colombia's colors. When I got home there were tulips from Emily and roses from my sister Helen. Wow, three flower gifts in one day! This morning Arthi gave me a porcelain box she brought from her recent trip home to India, it is very colorful. I didn't have any porcelain boxes, now I have two. I will use them to store earrings.

Now, the not so good part. On Monday I had a PET scan done. I have CT scans every 6 months because of having ocular melanoma. OM tends to be an aggressive cancer with a high incidence of spreading, usually to the liver. My oncologist decided I should have a PET scan this time instead, and I'm glad she did. When I saw my pulmonary doctor Tuesday a.m. he shared the PET scan results with me. It showed uptake in the right maxillary sinus, indicating a possible malignancy, likely mets from the eye. This morning I had a CT of the sinuses and saw the ENT surgeon. Well, my sinuses show no infection or sinusitis, I have a tumor in the posterior maxillary sinus on the right. I have been having a lot of facial pain and assumed it was dental, I have a dental appointment next week. I'll have to cancel that for now because I am having a surgical procedure next week to get a biopsy. I will have more surgery but just what depends on the biopsy. If it is recurrent melanoma we are hoping we can get a vaccine made. Melanoma doesn't respond well to chemotherapy. I will probably look for a clinical study if this is melanoma. So much to think about. Cancer, the "gift" that keeps on giving.

I see my oncologist tomorrow a.m. I have the very best medical team. There aren't many places where you'd have a PET scan one day, report the next, and everything set up the third day. For that I am very thankful.

Then Friday I go scrapbooking for the weekend. My favorite The Scrapbook Shop of St. Paul has moved to Lexington/Circle Pines. It's about 20 miles away, it used to be 2 miles away. I'm staying overnight at a motel so I can scrap two whole days and forget cancer for awhile.